Huntington's Disease Support Group - South Wales - Family support services
What we do
We are a volunteer run support group for people connected to Huntington's Disease to gather together, share information and knowledge and support each other.
Often people involved with HD can feel very isolated and that other people don't really understand what it means to have the disease, be at risk from it or care for someone with it.
We are here to help, you are not on your own.
Who do we support
Anyone connected to Huntington's Disease whether diagnosed, at risk, going through testing, family member, carer or friend.
Can anyone use this service?
Anyone
Service details for this family support services
Language: English medium setting
- Can provide specialist support for families of children with disabilities / additional needs Please contact to discuss your child(s) needs further.
- Relevant staff have a valid current DBS?
Social information
Address
Website
https://www.facebook.com/groups/362942847726615/
Contact methods
Email: huntingtonscardiff.hda@gmail.com
Web enquiry: https://www.facebook.com/groups/362942847726615/
Social media
Facebook
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Accessibility
Accessible toilets
Accessible parking
Access by ramps/level access
Opening times
Monthly meetings held in Cardiff usually on the last Sunday in the month - join the Facebook group for details or contact us via email. Fully accessible, plenty of parking and disabled parking.
Also general chatter in our private facebook group so you can get to know the others in the group outside of meetings.